The meeting went well, but the days leading up to it were a bit stressful. We had a pretty good idea what we wanted for Ben, but did not know what the professional opinions in the room would recommend. There are still details to iron out, but, thankfully, it appears that we are all on a similar page.
As I got up yesterday to prepare to leave for the meeting, I opened my facebook page and found this very timely video. It was an emotional day, but this video was just the encouragement we needed. The families featured in this video very accurately describe much of our journey, to date, with Ben. Thank you to the Dup15q Alliance for all you do to support families of children with this genetic syndrome, and for making this video.
If you know my family, and have not already done so, please watch this video. This is where we live.
Video shared with permission of Dup15q Alliance
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