While
Saturday's outing at the Kiwanis Junior Olympics was a good day, I suspect it was a different kind of day for me than it was for a majority of parents. It was so much more than just watching my kids compete in a few races. Because of the delays and disabilities associated with Ben's IDIC 15, days like this can be very complex.
Benny spends a large part of his life somewhat in a protective bubble. He attends a school specifically for children with developmental disabilities. He rides busing exclusive to his school. He takes numerous field trips with his school class. In all of these contexts, he is understood and accepted. When he attends Sunday School, he has a personal "buddy" who attends with him and looks out for him (a teenage girl who has made helping him in Sunday School her ministry). And, other than that, he is mostly with a network of loving immediate and extended family members.
But, the Kiwanis Junior Olympics was NOT the Kiwanis Junior
Special Olympics. No... to let him participate in this was to throw him into the world of
typical kids... and that's a little scary for this dad! One thing that worries me in these contexts is the hidden nature of Ben's disabilities. I think there is a tendency to be more accommodating to disabilities of a more visible nature. But, visibly, Ben is assumed to be "typical".
When he found out that he was old enough to "run a race like Dylan and Zachary", he was really excited. To deny him the opportunity would be the safe and protective thing, but it would have really disappointed him to watch his sister participate if he didn't get to. So, the first question that had to be decided was whether or not he would be able to perform the tasks with little or no accommodation.
A week, or so, before the registration was due, we took him to "track practice"... just like Dylan and Zachary. We went up to the school track on a Saturday evening and his older brothers were his coaches. They explained starting, running through the finish line, staying in his lane... then we let him run some 25 and 50 meter sprints. And... he did really good! But, that was with five of us explaining, coaching, and helping... a benefit he would not have on the day of the olympics. We felt, though, that he could handle it and signed him up.
Jen had class, so I took him to the event. I debated disclosing his disabilities and asking if I could assist him, but no other parents would be on the track with their kids, and it may not have been well received. Remember...
hidden disabilities...
I decided to just let him jump into the big, bad typical world and I stayed off the track, just like all the other parents. I did have the advantage of having his two older brothers working "inside" and some of their friends are acquainted with Benny, so I asked them to stick close when they could and look out for him... and maybe subtly ask some of their track teammates to do the same.
I have always been (and still am) a protective parent. But, I don't think I'm in the category of "helicopter parent". With Benny, though, that is debatable. Saturday, I definitely approached it. I stayed off the track and outside the fence when Benny was on the track, but I adjusted my position along the fence to mostly be in as close proximity to him as possible... allowing him to feel independent, but looking out for him.
It was a tough role. Tough because of some of the things I witnessed that made my heart hurt for my son.
Fortunately, I think a lot of things go past Ben. I'm not sure he absorbs all of the world around him. At least not all the bad parts. I think he always expects good of people. But, the world can be mean. Kids can be mean. Especially when they expect "typical" and they get a bit atypical.
A lot of typical seven year-olds do not make porpoise sounds. But, my Benny makes the coolest porpoise sounds EVER! It always makes me smile. But reactions of other seven year-olds are not so endearing. While waiting in the bullpen for his age group to race, he broke out in a chorus of porpoise sounds, to which another young man said, "you're stupid!" I'm not sure if Benny registered it... I sure hope not. But my heart broke. In a fatherly way, I reminded the boy he shouldn't talk to other people like that... but I wanted to hang him by his toes until he could make porpoise noises as cool as Ben!
Ben is also not as spatially aware as most. In another instance, he was waiting with a group of kids and spontaneously decided to do some leg stretches... like he's seen his older brothers do. Without being aware of his surroundings, he suddenly crouched and threw a leg out behind him, tripping a boy that was walking nearby. It looked a little deliberate, but I knew it was absolutely not. The boy verbally challenged Benny... "Hey kid! Why'd you trip me?" I'm not even sure Ben knew that he did, and I'm not sure he registered that the kid was talking to him. He just went about his business. So... since I was "hovering" nearby, I helped out by telling the boy that it was an accident and telling Ben to apologize.... which he did, but I'm not sure he knew why.
Yet another instance I foresaw, but was not close enough to intervene. They ran two heats of the 50m in his age group. They lined the first heat at the start, then lined up the second heat five or six feet behind the first, telling them to wait. To my dismay, Ben was in the second heat. I couldn't do anything, but I instantly knew that he would run with the first heat, because we explained to him to run as fast as he could when the gun fired. Sure enough, the gun fired and off went heat one plus Benny. An official chased him down and put him back in heat two and I feared that he would be confused and not run the second time. Helicopter Dad was right... gun went off and he stood there because he didn't want to make a second mistake. With a little prodding, he took off running as fast as he could.

I think all of these moments were harder on me than they were on him. He appeared to be having a blast! But, I can never tell how much of the world around him is impacting him, and I want to go ahead of him and smooth things out!
When it came time for the awards ceremony, I was, again, apprehensive for my son. In every event, they gave medals for first through third places and ribbons for fourth through sixth places. I wasn't sure whether he would win anything, and I wasn't sure if he would be crushed if he didn't or wouldn't really care. I'm not a fan of participation trophies, at least not in the typical world... but I was really hoping my son would win
something and I wasn't sure he would understand the whole concept of "not everyone can win".
I was pretty sure his best chance of winning a ribbon was the softball throw. We signed him up for that because it is something he has been working on at physical therapy. When they did the award, I had my camera at the ready and my fingers crossed. Sixth... not Benny. Fifth... not Benny. Fourth... not Benny. My daddy's heart hurt for my son, as I anticipated him working so hard and going home empty handed. Third place medal goes to... Ben! YES! No ribbon, but he MEDALED! I clapped. I cheered. I snapped a pic.
And, then I cried.
I'm not sure what the other parents thought, but I couldn't help it. I sat in the stands and cried. With some physical challenges... some mental challenges... some processing challenges... my son entered a contest of mostly typical kids to be like his big brothers... and he WON!
He also won a ribbon in one of his sprints. Man, was that kid excited! He couldn't see me wiping away tears because I was beaming at the same time. About 8 or 10 times, he turned around to face me in the stands, held up his medal and ribbon and (with a huge smile) yelled, "I WON!" Every time he did, I gave him a huge thumbs up and I wanted to stand up and tell the whole stands, "That's my boy... HE WON!"
Benny (center): "I WON!"
I suspect for most parents it was just a fun outing for their kids to run a few races and maybe win an award. For me, it was much more. It was hard to witness some of the reactions of people who do not understand Benny. And, it was really hard for this borderline helicopter special needs dad to stay "off track". But, in this instance, the risk was worth it to see him overcome some challenges and proclaim to me (and the rest of the folks in the stands), "I WON!"
Yes, you won, Benny! But, with or without ribbons and medals, you're always a winner to me! And... if they gave medals for porpoise impressions... you're medal would be golden! Love you kid!